• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
Know-it-all Nikki
  • Knit
  • My Heart
  • Read
  • Explore
    • Alaska
    • Depression and Anxiety
    • Life
    • Monday Motivation
    • Nikki’s Notes
    • Recipes
You are here: Home / CHD / ACHD Adventures with Nikki

ACHD Adventures with Nikki

By Know-it-All Nikki Leave a Comment

 

What do tornado warnings, cardioversions, and earthquakes have in common? Absolutely nothing unless you’re me. And then they all fall into the category of “stuff that only happens to me”.

Let me explain.

At the end of February, I made the trip from Alaska to Ohio to see my cardiology specialists. The trip was roughly a month in the planning so I knew it was going to happen, I just didn’t have a good idea as to when.

If you remember, in my previous post about National Heart Health Month, I mentioned I was back in Afib. What I didn’t talk about was the details.

Afib doesn’t impress all of my doctors

The new team I was supposed to be working from Seattle/Alaska said they weren’t concerned when I let them know I was not only out of rhythm but I’d been this way for over three months. They didn’t even seem impressed it was the second time in as much as six months that I had been in Afib.

Their reasoning was I was already on blood thinners and that was the most important issue in their minds. Had I not been therapeutic on blood thinners, the plan would’ve been to start me on them ASAP and then cardiovert me circa June 2017. But because I had an established protocol with anti-coagulants, it wasn’t pressing for them to get me back in sync (or *NSYNC if you’re a fan of the boy band by the same name). Instead, the attitude was to wait until I felt worse, or I was seen in their clinic in Anchorage at a date to be determined in April of this year.

Afib and Heart Failure are not friends

If you’re wondering about the millions of people around the world who deal with Afib and why they aren’t constantly cardioverted, I can’t answer that. I do know it sometimes has more to do with the type of heart problem they have. For instance, most people find themselves with acquired heart disease, meaning they develop heart problems with age, from poor health, or from an illness that attacks the heart. For those people, the solution may be to implant a pacemaker/defibrillator device that will shock them back into rhythm. Even some of us CHDers end up with that type of device.

I am not one of those people. I’m also in a category of adult CHD patients that doesn’t realize when I’m in Afib because I have complete heart block. FUN, RIGHT?!

No.

Heart failure happens when part of your heart can’t pump blood or fill with blood properly. In my case, that’s the right ventricle but since it’s actually doing the job the left ventricle should do, it’s already at a disadvantage.

From Nationwide Children’s Hospital on congestive heart failure in someone with dextro-transposition of the great arteries:

“Although the heart has been repaired, it is still not normal. The right ventricle, which usually pumps blood to the lungs (low-pressure) now pumps blood to the body (high pressure). The right ventricle handles the high-pressure load fairly well for many years but, eventually begins to wear down. Eventually, it becomes dilated, boggy, and weakens.

If the function of the right ventricle continues to worsen, despite medical treatment, a heart transplant is considered.”

For reference:

Normal Heart image via CDC

And my heart:

D-TGA heart image via CDC

So, it makes sense that the longer you are in Afib, the more damage it does to that already struggling right ventricle.

Thankfully, the team in Columbus, at Nationwide Children’s Hospital disagreed with the Seattle/Alaska team and decided I should go see them.

ACHD Adventures with Nikki

The team planned on cardioversion and a heart cath while I was in Ohio. Then they decided to sneak in a stress test and a 48-hour hospital stay to start me on a beta blocker/anti-arrhythmic medication. The last time I was on medication for arrhythmias and Afib was in childhood. I took that medication until I was around 18. (Side note: Our memories can be amazing sometimes. I may not be able to remember what I had for dinner two days ago, but I can still taste, AND SMELL the medication I took as a kid.)

Where was I? Oh yeah… everything went off without a hitch. I did well during the hospital stay, and after the cardioversion, they raised my heart rate on the pacemaker to a resting rate of 79-80, which explains why I felt a little jumpy for the first couple of days post-cardioversion. (Warn a girl, next time, will ya?!)

There’s still a lot more to tell, including a near a close encounter with a nanobot! But I’ll stop here for now.

Till next time ~

 

Filed Under: CHD, My Heart Tagged With: 1 in 100, ACHD, adult congenital heart disease, atrial fibrillation, Congenital heart disease awareness, heart arrhythmia, transposition of the great vessels

Affiliate Disclosure

Know-it-All Nikki is a participant in the Amazon Services LLC Associates Program, an affiliate advertising program designed to provide a means for sites to earn advertising fees by advertising and linking to amazon.com.

*Posts containing affiliate links will always be disclosed.

Previous Post: « A Month is Never Enough
Next Post: No, I do not want the senior discount »

Reader Interactions

Leave a Reply Cancel reply

Your email address will not be published. Required fields are marked *

This site uses Akismet to reduce spam. Learn how your comment data is processed.

Primary Sidebar

Hi there!

I’m Nikki and I’m thrilled to have you here. I’m powered by a good chai latte, loads of chocolate, and humor. Here at Know-it-all Nikki, I dish up honest conversations about life with adult congenital heart disease and mental health. I also share my love of books, knitting, midlife, and life after divorce. So, pull up a seat and grab a beverage. Let’s spill some tea, have a lot of laughs, and a few good cries. To learn more about what makes me tick, CLICK HERE

Footer

  • About this site
  • Advertising
    • Request a book review
  • Privacy Policy
  • Hire Me

Copyright 2006-2025 NLS Creative Privacy Policy