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You are here: Home / Explore / Life / Closed for the summer

Closed for the summer

By Know-it-All Nikki Leave a Comment

No, I haven’t actually gone fishing. I don’t fish.

However, I like the saying “gone fishing”. It brings to mind the idea that it’s time for a break, to step back, relax.

Sometimes we’re forced to take a break. That’s never how I choose to relax but this summer it felt necessary.

Revisiting an Old Season

Since taking on the title of a foster parent, my summer has been anything but the quiet, low-key kind of summer break I prefer. I didn’t enroll Dino Dan (he lives for all things Dinosaurs) in any extra summer activities and I’m glad I didn’t. Between a monthly home visit with the social worker, thrice-weekly visits with mom, two weekly visits with grandma and weekly therapy visits, it’s hard to get another activity in. We signed up for summer reading at the library because I knew that’s the most we could probably handle, and even then we didn’t fully track reading as we should’ve.

Truthfully, I knew what I was getting into with Dino Dan. He’s a great kid who needs people in his corner and I’m happy to do it. Unfortunately putting myself back into this season of parenting has its drawbacks; ones I haven’t necessarily missed.

View this post on Instagram

 

Sometimes I sit on the porch and wish I had new patio furniture while my friend talks about #minecraft.

A post shared by Nichole Smith #writer (@knowitallnikki) on Jun 23, 2019 at 4:38pm PDT

When I take time away from Dino Dan, I end up feeling guilty about wanting or needing time for myself. Of course, I have a support system here at home to help out but I realize not all of them signed up for this adjustment willingly so I try my best not to put more on them than I need to.  Plus, it’s not like Dino Dan has ever known what it is like to have a mom that works from home so he doesn’t quite understand what it means for me to “go to work” and for some reason I am having a much harder time helping him understand the concept than I did when my own children were his age.

Around mid-June, I knew summer wasn’t going to play out the way I wanted. The husband arrived home after 11 months away (let the home improvement projects begin!) and attending to Dino Dan’s needs and getting him where he needed to be proved to be complicated enough that I knew taking on any new writing projects or clients would be difficult, to say the least. I was already struggling to meet current deadlines. Thankfully, I have an understanding editor who knew what I needed to prioritize.

Takes a Licking, Keeps on Ticking

Then there’s the matter of my own health. I’ve kept up fine with Dino Dan and if I need to rest, I do it. Since May I have been in preparation mode for another trip back to Ohio. I was spending a large part of my waking hours on the phone with doctors, specialists, and oral surgeons (time to take out my wisdom teeth!) all in the hopes of securing a date for surgery (if ever there was a time for a personal assistant…). It wasn’t long before I became overwhelmed with the planning and stress of making sure EVERYTHING and everyone was taken care of while I’d be away.

I’m not sure who I am in this scenario but man is it HOT.

As of yet, I haven’t been able to secure a date for surgery. We moved the original time frame because we were cutting it very close to get plane tickets and it seemed like there was always something new that needed addressing.

Me. Every day this summer.

I made the executive decision to push things back a bit in order to get over the last few hurdles the Children’s hospital and I have. With the new time frame in place, I feel far more confident about everything and am finally looking forward to the next steps. While my exact travel and surgery dates are still unknown, my EP doctor isn’t as worried as I have been because, well, she knows more than me for starters, and though I’m still in heart failure, my symptoms are very well managed.

If there’s only one regret I have about how this summer has gone, it’s that I didn’t take the summer off from the start. I could’ve saved myself a lot of hassle, stress, and a lot of general frustration. Wondering why I didn’t do that sooner doesn’t really get me anywhere; the summer is nearly over. However, in the middle of all of my “A-Ha!” moments, I did learn a couple of things that will hopefully make my return to the office in a few weeks smoother and more productive. I’m pretty excited to share them with you.

Friends, the summer isn’t over yet – I highly recommend putting out your “gone fishing” sign and taking to the water, sky, or your own backyard and rejuvenate your spirit before fall and the holidays hit, you’ll be glad you did.

Filed Under: Life Tagged With: ACHD, home office life, me time, self care, Summer vacation, work life balance

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Hi there!

I’m Nikki and I’m thrilled to have you here. I’m powered by a good chai latte, loads of chocolate, and humor. Here at Know-it-all Nikki, I dish up honest conversations about life with adult congenital heart disease and mental health. I also share my love of books, knitting, midlife, and life after divorce. So, pull up a seat and grab a beverage. Let’s spill some tea, have a lot of laughs, and a few good cries. To learn more about what makes me tick, CLICK HERE

knowitallnikki

#writer 📲 #Binder #bookblogger #Knitter 🐑 💙 #chd #ACHD #TGA📧 hello@knowitallnikki.com 📸 ©️ @knowitallnikki


Ok, okay, I won't go anywhere. Promise.
.
.
.
.
#c

Ok, okay, I won't go anywhere. Promise.
.
.
.
.
#charliesworld #catstagram #instacats #catsofig #housecatlife


Technically, he's not ON my planner, thus preventi
Technically, he's not ON my planner, thus preventing me from filling it out, but he IS laying on the stickers I need to fill in the days and dates.
.
.
.
.
#charliesworld #instacats #catsofinstagram #catsofig #housecatlife catstagram


The world is falling apart.
The world is falling apart.


Head to the blog (link in bio) and read the latest
Head to the blog (link in bio) and read the latest. I've been trying to figure out how to write this for 2 months now and I still don't know if I got it right.
.
.
.
#knowitallnikkimovestoohio #dtga #heartmonth #ACHD #adultchdsurvivor


Well poop, I missed day 4 (Early Answers, Lasting
Well poop, I missed day 4 (Early Answers, Lasting Impact) and day 5 (How We Monitorthe Heart)! But it's fine! Because they both fit nicely for today's adventures which consisted of a carotid artery ultrasound (day 5) and a series of messages between myself and @nationwidekids to discuss how best to approach the weight loss struggle (day 4). 🤨😠

But it also ties in beautifully with day 6 of #heartmonth, #choosingjoy because despite all of the crap that goes along with being an adult with CHD, I am genuinely joyful. Some of comes out in sarcasm but I've told people if I'm not cracking jokes or inserting some token sarcasm into the day, then something is truly wrong. The last 2 years have been hard, but believe me when I say, I AM HAPPY and I'm wearing red today!
.
.
.
.
#ACHD #congenitalheartdefectsurvivor #WearRedforHeartMonth


I almost missed it, day 3 prompt for #heartmonth i
I almost missed it, day 3 prompt for #heartmonth is #lifebetweenappointments 

Yeesh, where do I start? Right now my life between appointments is a little chaotic. The number of appointments has increased a thousand fold than what I was used to growing up.  There are more appointments now than I had when I was pregnant with all four kids!

I struggle to keep them straight or where they're going to be. I write them down in a paper planner, my wall calendar, and my phone's calendar. And I still wind up looking them up multiple times because I don't trust my brain's ability to recall.

I'm expected to write down detailed symptoms. I don't recognize symptoms as symptoms. It just feels like a Tuesday to me. But do try to have a normal life, the docs encourage: eat right, be active, get sleep. How do I do that and not wonder if what I'm feeling while I'm trying to be normal is a symptom?
.
.
.
.
#heartfailure #congestiveheartfailure #congenitalheartdefect


Waiting.
.
.
.
#catsofinstagram #charliesworld #in

Waiting.
.
.
.
#catsofinstagram #charliesworld #instacats #catsofig #catstagram


Day 2 of #heartmonth is #motivationmonday. All I c
Day 2 of #heartmonth is #motivationmonday. All I can say, is sometimes motivation feels like the end of a very long tunnel; a pinprick of light in an otherwise black abyss. Motivation eludes me more than I care to admit. When it feels unattainable I feel like the little girl I used to be, opening my eyes in a pitch black room, are my eyes actually open? Making my way across the room, arms outstretched, hoping I don't run into anything, or worse, fall. 
And then other times, like on this Monday, motivation arrives and it feels easy, like a special occasion you'vebeen waiting for. So you wear the anatomical heart earrings your daughter bought you and you don the gifted knit heart cowl your knitty BFF made for you and for a day you feel normal.
.
.
.
.
#congenitalheartdefectsurvivor #congestiveheartfailure #dtga


Today kicks off the first day of #heartmonth. I st
Today kicks off the first day of #heartmonth. I still think it's silly to only give one day, one month, or even one week to talk about heart disease. Alas, here we are. 

I'm going to do my best to follow the 28 daily prompts for #heartdisease and #chdawareness but I make no promises.

Today's prompt is #BeyondtheDiagnosis. To me, looking beyond being born with a CHD means a few things:

It's the invisible things that can't be measured on a chart, like the fatigue, sadness for the health I wasn't born with, and the mental math of asking myself if I have enough energy for all I want to get accomplished in a week, or even a day.

It's being seen as a whole person; not the condition the doctors are treating. This a part of me, not all of me. I'm still a parent, friend, writer, a hopeless romantic. Yes, I'm a heart patient, I ALWAYS will be, but I'm also opinionated, stubborn, funny, and a person with real feelings. 

But most of all it's refusing to be reduced to number in the healthcare system, or someone else's discomfort.
.
.
.
#chdawareness



Follow on Instagram


knowitallnikki

#writer 📲 #Binder #bookblogger #Knitter 🐑 💙 #chd #ACHD #TGA📧 hello@knowitallnikki.com 📸 ©️ @knowitallnikki

Ok, okay, I won't go anywhere. Promise. . . . . #c Ok, okay, I won't go anywhere. Promise.
.
.
.
.
#charliesworld #catstagram #instacats #catsofig #housecatlife
Technically, he's not ON my planner, thus preventi Technically, he's not ON my planner, thus preventing me from filling it out, but he IS laying on the stickers I need to fill in the days and dates.
.
.
.
.
#charliesworld #instacats #catsofinstagram #catsofig #housecatlife catstagram
The world is falling apart. The world is falling apart.
Head to the blog (link in bio) and read the latest Head to the blog (link in bio) and read the latest. I've been trying to figure out how to write this for 2 months now and I still don't know if I got it right.
.
.
.
#knowitallnikkimovestoohio #dtga #heartmonth #ACHD #adultchdsurvivor
Well poop, I missed day 4 (Early Answers, Lasting Well poop, I missed day 4 (Early Answers, Lasting Impact) and day 5 (How We Monitorthe Heart)! But it's fine! Because they both fit nicely for today's adventures which consisted of a carotid artery ultrasound (day 5) and a series of messages between myself and @nationwidekids to discuss how best to approach the weight loss struggle (day 4). 🤨😠

But it also ties in beautifully with day 6 of #heartmonth, #choosingjoy because despite all of the crap that goes along with being an adult with CHD, I am genuinely joyful. Some of comes out in sarcasm but I've told people if I'm not cracking jokes or inserting some token sarcasm into the day, then something is truly wrong. The last 2 years have been hard, but believe me when I say, I AM HAPPY and I'm wearing red today!
.
.
.
.
#ACHD #congenitalheartdefectsurvivor #WearRedforHeartMonth
I almost missed it, day 3 prompt for #heartmonth i I almost missed it, day 3 prompt for #heartmonth is #lifebetweenappointments 

Yeesh, where do I start? Right now my life between appointments is a little chaotic. The number of appointments has increased a thousand fold than what I was used to growing up.  There are more appointments now than I had when I was pregnant with all four kids!

I struggle to keep them straight or where they're going to be. I write them down in a paper planner, my wall calendar, and my phone's calendar. And I still wind up looking them up multiple times because I don't trust my brain's ability to recall.

I'm expected to write down detailed symptoms. I don't recognize symptoms as symptoms. It just feels like a Tuesday to me. But do try to have a normal life, the docs encourage: eat right, be active, get sleep. How do I do that and not wonder if what I'm feeling while I'm trying to be normal is a symptom?
.
.
.
.
#heartfailure #congestiveheartfailure #congenitalheartdefect
Waiting. . . . #catsofinstagram #charliesworld #in Waiting.
.
.
.
#catsofinstagram #charliesworld #instacats #catsofig #catstagram
Day 2 of #heartmonth is #motivationmonday. All I c Day 2 of #heartmonth is #motivationmonday. All I can say, is sometimes motivation feels like the end of a very long tunnel; a pinprick of light in an otherwise black abyss. Motivation eludes me more than I care to admit. When it feels unattainable I feel like the little girl I used to be, opening my eyes in a pitch black room, are my eyes actually open? Making my way across the room, arms outstretched, hoping I don't run into anything, or worse, fall. 
And then other times, like on this Monday, motivation arrives and it feels easy, like a special occasion you'vebeen waiting for. So you wear the anatomical heart earrings your daughter bought you and you don the gifted knit heart cowl your knitty BFF made for you and for a day you feel normal.
.
.
.
.
#congenitalheartdefectsurvivor #congestiveheartfailure #dtga
Today kicks off the first day of #heartmonth. I st Today kicks off the first day of #heartmonth. I still think it's silly to only give one day, one month, or even one week to talk about heart disease. Alas, here we are. 

I'm going to do my best to follow the 28 daily prompts for #heartdisease and #chdawareness but I make no promises.

Today's prompt is #BeyondtheDiagnosis. To me, looking beyond being born with a CHD means a few things:

It's the invisible things that can't be measured on a chart, like the fatigue, sadness for the health I wasn't born with, and the mental math of asking myself if I have enough energy for all I want to get accomplished in a week, or even a day.

It's being seen as a whole person; not the condition the doctors are treating. This a part of me, not all of me. I'm still a parent, friend, writer, a hopeless romantic. Yes, I'm a heart patient, I ALWAYS will be, but I'm also opinionated, stubborn, funny, and a person with real feelings. 

But most of all it's refusing to be reduced to number in the healthcare system, or someone else's discomfort.
.
.
.
#chdawareness
Follow on Instagram

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