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You are here: Home / My Heart / The Sensible Valentine

The Sensible Valentine

By Know-it-All Nikki 2 Comments

This Valentine’s Day, I will not complain that I didn’t get to go out anywhere “good” to eat or get spoiled with chocolates and roses. This year I somehow feel different about the month of love.

It is especially the month of love because it is our anniversary month and instead of planning big romantic things like we usually do for our Leap Year anniversary, we are planning practical, sensible things; because while it is the both the big (and small) romantic things that remind us of the commitment that we made 16 years ago, it is the practical and sensible things that have allowed us to come this far (mostly it’s the hubby who has come this far… dragging me kicking and screaming in the country behind him. True Story).

This Valentine’s Day I’m content for all that I have. Yesterday, Brian and I ventured out on a trip to meet my new doctor (I don’t have just a doctor, I have a team of doctors. Awesome.) and learn how well my heart and pacemaker are keeping up with me despite all my efforts to ignore my situation. (I really don’t have a situation but I liked the word better than saying DISEASE or DEFECT.)

After a long six hours of testing, waiting, talking, analyzing and meeting just a slew of people who are so patient, kind, and just amazingly awesome, we have determined that the pacemaker is fine and I am doing “remarkable well” (for a non compliant patient. Heh.) and the likelihood of surgery is pretty much zero. Of course I will have my first ever cardiac CAT scan that will allow the doctors to see just how well the repair work from birth is holding up after all these years… why no one thought of this before is beyond me, as well as the ablation surgery from six years ago. I also have to do the dreaded treadmill stress test (it involves me begging to be let off the damn thing after probably a minute or two on it) and oxygen analysis (that’s the not the correct terminology but I can’t remember what it is so that’s how I’m describing things). I’m going to try and schedule that stuff for a month or so out. I needs to get in shape just for the test yo!

Brian hates these long days. He’s not used to them and he’s not used to teams of doctors swarming in. He had his questions, probably so he could remind me later that I was fine and not dying so yes I really do have to dishes on occasion, but he held up like a champ and managed to stay awake all day after working a 12 hour shift.

Umm... So Yes. I do have a few of these little lovelies for Valentine's Day

So there will be no whining from me about Valentine’s Day. I don’t need flowers or candy or fancy schmancy anything this year. I have good health (shocking) and a wonderful, patient man who will drive almost two hours in rush hour traffic on no sleep, make faces at me from across the waiting room, play angry birds on my Nook to keep himself awake, withstand 6 hours of shuffling back and forth for testing and then treat us both to dinner out and a good night’s sleep away from the kids and in a month, he’ll likely do it again because he knows I will not drive myself in downtown Columbus traffic.

Tonight, I will be snuggled up with kiddos on the couch, reading homework, recounting my adventure and the tests (my kids are weird, they like hearing how mommy looked like she was wired up like a bomb for a day), and then finish off my day with a glass of wine and a kiss or two from the ever patient husband and just be thankful that instead of planning surgery this year, we’ll be planning a 2nd floor for the garage, saving money for conferences, our daughter’s trip to DC, and a new washing machine.

And for me, that just makes my heart sing the sweetest love song.

I hope you all have the best Valentine’s Day and are blessed in both in love, whether it be from that special someone or you kids, and in the practical and sensible things in life.

image: budgetstoc

Filed Under: My Heart Tagged With: anniversary, family, heart health, love, Pacemakers, valentine's day

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Previous Post: « CHD Awareness from a Grown Up Point of View
Next Post: There is No Pink Slime in my Beef »

Reader Interactions

Comments

  1. Stuart Smiths

    February 15, 2012 at 8:59 am

    Happy 16th Anniversary.
    I loved your article. I hope you and Brian had a good time this Valentine. I also wish you good health and hope that the number of doctors in your doctor’s team reduces and you get a beautiful life ahead.

    Best wishes.

    -Stuart

    Reply
  2. Yosi

    February 15, 2012 at 11:51 am

    Hello Nichole,
    This is in response to your article on Aug 9, 2010-Accidental Death by Hyperthermia: Tyler’s Story.
    For some reason I couldn’t post.
    I become aware of this tragedy and others across the USA and other countries after my summer visit to the Middle East in 2011. Since then, I have started a small company and I am dedicating my time to manufacturer a device that will prevent those accidences from happening and save kids lives. The company is working in a stealth mode and you will not find any website yet or advertisement. We are letting few people that care know about this, as we are trying to raise seed money. If you would like to help or know others that can , please contact me via email at ynimni@hotmail.com.
    Thank you.
    Yosi.

    Reply

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Hi there!

I’m Nikki and I’m thrilled to have you here. I’m powered by a good chai latte, loads of chocolate, and humor. Here at Know-it-all Nikki, I dish up honest conversations about life with adult congenital heart disease and mental health. I also share my love of books, knitting, midlife, and life after divorce. So, pull up a seat and grab a beverage. Let’s spill some tea, have a lot of laughs, and a few good cries. To learn more about what makes me tick, CLICK HERE

knowitallnikki

#writer 📲 #Binder #bookblogger #Knitter 🐑 💙 #chd #ACHD #TGA📧 hello@knowitallnikki.com 📸 ©️ @knowitallnikki


Ok, okay, I won't go anywhere. Promise.
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.
.
.
#c

Ok, okay, I won't go anywhere. Promise.
.
.
.
.
#charliesworld #catstagram #instacats #catsofig #housecatlife


Technically, he's not ON my planner, thus preventi
Technically, he's not ON my planner, thus preventing me from filling it out, but he IS laying on the stickers I need to fill in the days and dates.
.
.
.
.
#charliesworld #instacats #catsofinstagram #catsofig #housecatlife catstagram


The world is falling apart.
The world is falling apart.


Head to the blog (link in bio) and read the latest
Head to the blog (link in bio) and read the latest. I've been trying to figure out how to write this for 2 months now and I still don't know if I got it right.
.
.
.
#knowitallnikkimovestoohio #dtga #heartmonth #ACHD #adultchdsurvivor


Well poop, I missed day 4 (Early Answers, Lasting
Well poop, I missed day 4 (Early Answers, Lasting Impact) and day 5 (How We Monitorthe Heart)! But it's fine! Because they both fit nicely for today's adventures which consisted of a carotid artery ultrasound (day 5) and a series of messages between myself and @nationwidekids to discuss how best to approach the weight loss struggle (day 4). 🤨😠

But it also ties in beautifully with day 6 of #heartmonth, #choosingjoy because despite all of the crap that goes along with being an adult with CHD, I am genuinely joyful. Some of comes out in sarcasm but I've told people if I'm not cracking jokes or inserting some token sarcasm into the day, then something is truly wrong. The last 2 years have been hard, but believe me when I say, I AM HAPPY and I'm wearing red today!
.
.
.
.
#ACHD #congenitalheartdefectsurvivor #WearRedforHeartMonth


I almost missed it, day 3 prompt for #heartmonth i
I almost missed it, day 3 prompt for #heartmonth is #lifebetweenappointments 

Yeesh, where do I start? Right now my life between appointments is a little chaotic. The number of appointments has increased a thousand fold than what I was used to growing up.  There are more appointments now than I had when I was pregnant with all four kids!

I struggle to keep them straight or where they're going to be. I write them down in a paper planner, my wall calendar, and my phone's calendar. And I still wind up looking them up multiple times because I don't trust my brain's ability to recall.

I'm expected to write down detailed symptoms. I don't recognize symptoms as symptoms. It just feels like a Tuesday to me. But do try to have a normal life, the docs encourage: eat right, be active, get sleep. How do I do that and not wonder if what I'm feeling while I'm trying to be normal is a symptom?
.
.
.
.
#heartfailure #congestiveheartfailure #congenitalheartdefect


Waiting.
.
.
.
#catsofinstagram #charliesworld #in

Waiting.
.
.
.
#catsofinstagram #charliesworld #instacats #catsofig #catstagram


Day 2 of #heartmonth is #motivationmonday. All I c
Day 2 of #heartmonth is #motivationmonday. All I can say, is sometimes motivation feels like the end of a very long tunnel; a pinprick of light in an otherwise black abyss. Motivation eludes me more than I care to admit. When it feels unattainable I feel like the little girl I used to be, opening my eyes in a pitch black room, are my eyes actually open? Making my way across the room, arms outstretched, hoping I don't run into anything, or worse, fall. 
And then other times, like on this Monday, motivation arrives and it feels easy, like a special occasion you'vebeen waiting for. So you wear the anatomical heart earrings your daughter bought you and you don the gifted knit heart cowl your knitty BFF made for you and for a day you feel normal.
.
.
.
.
#congenitalheartdefectsurvivor #congestiveheartfailure #dtga


Today kicks off the first day of #heartmonth. I st
Today kicks off the first day of #heartmonth. I still think it's silly to only give one day, one month, or even one week to talk about heart disease. Alas, here we are. 

I'm going to do my best to follow the 28 daily prompts for #heartdisease and #chdawareness but I make no promises.

Today's prompt is #BeyondtheDiagnosis. To me, looking beyond being born with a CHD means a few things:

It's the invisible things that can't be measured on a chart, like the fatigue, sadness for the health I wasn't born with, and the mental math of asking myself if I have enough energy for all I want to get accomplished in a week, or even a day.

It's being seen as a whole person; not the condition the doctors are treating. This a part of me, not all of me. I'm still a parent, friend, writer, a hopeless romantic. Yes, I'm a heart patient, I ALWAYS will be, but I'm also opinionated, stubborn, funny, and a person with real feelings. 

But most of all it's refusing to be reduced to number in the healthcare system, or someone else's discomfort.
.
.
.
#chdawareness



Follow on Instagram


knowitallnikki

#writer 📲 #Binder #bookblogger #Knitter 🐑 💙 #chd #ACHD #TGA📧 hello@knowitallnikki.com 📸 ©️ @knowitallnikki

Ok, okay, I won't go anywhere. Promise. . . . . #c Ok, okay, I won't go anywhere. Promise.
.
.
.
.
#charliesworld #catstagram #instacats #catsofig #housecatlife
Technically, he's not ON my planner, thus preventi Technically, he's not ON my planner, thus preventing me from filling it out, but he IS laying on the stickers I need to fill in the days and dates.
.
.
.
.
#charliesworld #instacats #catsofinstagram #catsofig #housecatlife catstagram
The world is falling apart. The world is falling apart.
Head to the blog (link in bio) and read the latest Head to the blog (link in bio) and read the latest. I've been trying to figure out how to write this for 2 months now and I still don't know if I got it right.
.
.
.
#knowitallnikkimovestoohio #dtga #heartmonth #ACHD #adultchdsurvivor
Well poop, I missed day 4 (Early Answers, Lasting Well poop, I missed day 4 (Early Answers, Lasting Impact) and day 5 (How We Monitorthe Heart)! But it's fine! Because they both fit nicely for today's adventures which consisted of a carotid artery ultrasound (day 5) and a series of messages between myself and @nationwidekids to discuss how best to approach the weight loss struggle (day 4). 🤨😠

But it also ties in beautifully with day 6 of #heartmonth, #choosingjoy because despite all of the crap that goes along with being an adult with CHD, I am genuinely joyful. Some of comes out in sarcasm but I've told people if I'm not cracking jokes or inserting some token sarcasm into the day, then something is truly wrong. The last 2 years have been hard, but believe me when I say, I AM HAPPY and I'm wearing red today!
.
.
.
.
#ACHD #congenitalheartdefectsurvivor #WearRedforHeartMonth
I almost missed it, day 3 prompt for #heartmonth i I almost missed it, day 3 prompt for #heartmonth is #lifebetweenappointments 

Yeesh, where do I start? Right now my life between appointments is a little chaotic. The number of appointments has increased a thousand fold than what I was used to growing up.  There are more appointments now than I had when I was pregnant with all four kids!

I struggle to keep them straight or where they're going to be. I write them down in a paper planner, my wall calendar, and my phone's calendar. And I still wind up looking them up multiple times because I don't trust my brain's ability to recall.

I'm expected to write down detailed symptoms. I don't recognize symptoms as symptoms. It just feels like a Tuesday to me. But do try to have a normal life, the docs encourage: eat right, be active, get sleep. How do I do that and not wonder if what I'm feeling while I'm trying to be normal is a symptom?
.
.
.
.
#heartfailure #congestiveheartfailure #congenitalheartdefect
Waiting. . . . #catsofinstagram #charliesworld #in Waiting.
.
.
.
#catsofinstagram #charliesworld #instacats #catsofig #catstagram
Day 2 of #heartmonth is #motivationmonday. All I c Day 2 of #heartmonth is #motivationmonday. All I can say, is sometimes motivation feels like the end of a very long tunnel; a pinprick of light in an otherwise black abyss. Motivation eludes me more than I care to admit. When it feels unattainable I feel like the little girl I used to be, opening my eyes in a pitch black room, are my eyes actually open? Making my way across the room, arms outstretched, hoping I don't run into anything, or worse, fall. 
And then other times, like on this Monday, motivation arrives and it feels easy, like a special occasion you'vebeen waiting for. So you wear the anatomical heart earrings your daughter bought you and you don the gifted knit heart cowl your knitty BFF made for you and for a day you feel normal.
.
.
.
.
#congenitalheartdefectsurvivor #congestiveheartfailure #dtga
Today kicks off the first day of #heartmonth. I st Today kicks off the first day of #heartmonth. I still think it's silly to only give one day, one month, or even one week to talk about heart disease. Alas, here we are. 

I'm going to do my best to follow the 28 daily prompts for #heartdisease and #chdawareness but I make no promises.

Today's prompt is #BeyondtheDiagnosis. To me, looking beyond being born with a CHD means a few things:

It's the invisible things that can't be measured on a chart, like the fatigue, sadness for the health I wasn't born with, and the mental math of asking myself if I have enough energy for all I want to get accomplished in a week, or even a day.

It's being seen as a whole person; not the condition the doctors are treating. This a part of me, not all of me. I'm still a parent, friend, writer, a hopeless romantic. Yes, I'm a heart patient, I ALWAYS will be, but I'm also opinionated, stubborn, funny, and a person with real feelings. 

But most of all it's refusing to be reduced to number in the healthcare system, or someone else's discomfort.
.
.
.
#chdawareness
Follow on Instagram

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